141 weeks in to the trial some kids are reporting a increase in walking distance . I see that one 12 yr old gained almost 60% in 6MWD . Proteinuria is reversible and mild....blood thining is also not sever and never went below 75 x 10^9 /L......I see these are reversal of the disease.....obviously with variation........Hope that the variation is only on the time duration in realising full benefit

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thanks for good news. I was so disappionted after reading

Now i can enjoy my weekend.

I am yet to see how was hospitalisation explained with mild reversible proteinuria. Translators voice overwrote that of the presenter.

I guess just one word got blown out of proportion, while the reporter (Adam Feuerstein) choose to neglect the positive news presented.

This is want i wanted to hear :). Thanks for your input Tulika.

Thanks for the YouTube link Tulika!

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