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Permalink Reply by Trinh Nguyen on October 22, 2015 at 5:12am

Cost is unbelievable:

In Germany:

Box of 30tablet 125mg: 3822 Euro

Box of 30tab. 250mg: 7588 Euro

Box of 30tab 1000mg: 30180 Euro

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Permalink Reply by Moein on October 22, 2015 at 9:14am

And who can afford it?
It means that developing a drug for DMD will not be that important as long as the prices will be like this!
Wheelchair is much cheaper!!!!!!!!

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Permalink Reply by David on October 22, 2015 at 3:37pm

Sad fact of market capitalism. Those who can pay, should. Those who can't, lobby your local politicians!

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Permalink Reply by Moein on October 22, 2015 at 3:44pm

We are facing two problems now instead of one:

1.finding a treatment or cure for DMD

2.Afford the crazy price!

It seems that those with DMD have not the right to LIVE!!!!!

I am not sure which straw we should clutch at?!!!!!

Also,does this mean that any drug for DMD (IF APPROVED) will be in the same price range?

I am very sad

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Permalink Reply by Andrew Kerr on October 22, 2015 at 7:34pm

New drugs are usually very expensive because they are very expensive to develop, test, and get through approval phases.  I don't think any family will likely be able to afford most treatments without insurance or Government assistance.

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Permalink Reply by Moein on October 22, 2015 at 9:02pm

Why New Drugs Are So Expensive

http://www.technologyreview.com/featuredstory/520441/a-tale-of-two-...

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Permalink Reply by Elie Feghali on October 23, 2015 at 2:42am

It is a drug to be taken for life! Should it be same range of a treatment???

Andrew Kerr said:

New drugs are usually very expensive because they are very expensive to develop, test, and get through approval phases.  I don't think any family will likely be able to afford most treatments without insurance or Government assistance.

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