Does anyone have any information on the power plate, using whole body vibrations to stimulate the brain and muscles in our boys?  I am wondering if this is something that may be of help, or not worth the time and $. 

Thank you,

Sheri

 

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Pat responded to this on Facebook.  Basic ghist of it was that they were looking at it and considering funding some kind of study.  If I could figure out the new Facebook, I'd copy and paste it or give you a link - but alas...
Thanks Keith!  I did see Pat's response along with Cori's, however I am still unclear if any of the DMD boys have tried it???  Would it be foolish of me to put my 5yo at a low cellular dose for a short time to see the results.  What I heard from our local clinics PT was that there was nothing to back it and in his opinion could possibly do damage...(muscular mechanical break down).  The last thing any of us would want!  =(  However, nothing can be found..positive or negative, that I know of.

There has been some general interest in the power plate and some basic studies proposed.  The Power Plate is currently in trial in elderly populations.   Pilot studies have been proposed focused on use of the power plate to increase bone density but physicians disagree, most prefering the use of bisphosphonates.   Today in Ottawa, Leanne Ward is meeting with physicians across Canada to develop a DMD bone health consortium and in December, the international meeting on endocine issues.   They have agreed to provide information for parents/families about interventions in bone health.  We will make sure they include information related to the power plate, current collective thought on its use and potential impact in DMD as well as any future studies.

Thank you Pat; for always looking outside of the box, exploring every avenue and never giving up!  I will be looking forward to what we find in December, and will continue to explore in the mean time.  ;)  Sheri

Pat Furlong said:

There has been some general interest in the power plate and some basic studies proposed.  The Power Plate is currently in trial in elderly populations.   Pilot studies have been proposed focused on use of the power plate to increase bone density but physicians disagree, most prefering the use of bisphosphonates.   Today in Ottawa, Leanne Ward is meeting with physicians across Canada to develop a DMD bone health consortium and in December, the international meeting on endocine issues.   They have agreed to provide information for parents/families about interventions in bone health.  We will make sure they include information related to the power plate, current collective thought on its use and potential impact in DMD as well as any future studies.

Hi Sheri, haven't tried Powerplate but my son - 10yo with DMD has been doing Pilates with a personal trainer with the intention of preserving his muscle strength, joint flexibility, easing the stress on his back caused by toe walking and lordosis. It's been 6 months of weekly sessions now and we are very happy with the results. He is able to swing onto his feet when he wakes up. He is able to break a fall without smashing his face into the ground..and his overall body consciousness has improved - helps during PT and constant postural correction. Heard there is something called 'Rehabilitative Pilates' in the West..on the same lines. Our Pilates instructor is not a specialised trainer. Just happens that he's able to diagnose and resolve through his Art.

What is Pilates and how is it done?

Pilates, like Yoga, has become a common way to exercise. Pilates is a technique that focuses on core strengthening, balance, and flexibility. These principles are some of the same principles used in the rehabilitation of many common orthopedic problems.

http://orthopedics.about.com/od/alternativetreatments/qt/pilates.htm

In our boys, it helps to maintain muscle strength and flexibility, teaches  them to use their core strength for various physical activities such as wheeling themselves in a manual wheel chair, sitting up from a lying down position in bed, twisting their trunk while reaching for something, lacing shoes in a seated position. It also maintains trunk and back muscles, reduces stiffness and tightness in the lower back, neck, hamstrings etc. It is important to get an experienced trainer who can analyse what our boys can and cannot do and the biomechanical reasons for their inability to do something. The trainer then proceeds to resolve this with various Pilates techniques. Breathing techniques are also part of Pilates training and it helps our boys tremendously.

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