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Hi JoAnne,
My son had been in PT/OT before the diagnosis also. Once he was diagnosed he continued with PT/OT back to back 30 minutes each weekly in addition to pre-school M-Th for 2.5 hours. We did therapy on Fridays. He would do PT for 30 min, they would overlap PT/OT for 15 minutes and then OT for 30 min. He was 4 at that point. What he did at PT/OT was not streching which we did/do at home daily, it was alot of core body strenghening activites, balance activites and things like that in PT. For OT he had/has many sensory issues that he needed help with. He loved going to therapy. He still see's the same PT and he's going to be 8 tomorrow. He does not get any type of stretching/PT at school. He never qualified and honestly, I prefer he be kept in the classroom as much as possible. My son has a deletion of 48-52, not sure if that makes a difference, but he is doing fantastic as far as his DMD goes. I truly believe that the work that is done by his PT (who has a good amount of experience with DMD boys) has made a difference. I have had other DMD parents tell me they would not know he had it to look at him. I think your gut is telling you the right thing here with your current therapy group. But don't completely give up on weekly therapy based on that group either.
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