I think it's a little unfair to say that MDA doesn't do anything for our boys. They've funded literally hundreds of millions of dollars of research. They funded the foundational research that is the basis for much of what's hapenning today - things like discovering the dystrophin gene. They continue to fund research in all NM diseases still today. We'd be 20 years behind where we are today if we waited for the government to do the research that MDA started. The telethons have brought in more than $1.5 billion dollars since they started. They've raised a tremendous amount of awareness. If anyone thinks MD doesn't have the awareness it deserves - imagine what it would be without the telethons and Jerry Lewis.
You can certainly argue that MDA could use more of their raised funds for programs. They're only rated a 2 star charity by Charity Navigator. You could also take issue with which programs they choose to spend on. But, they spent $146 million on programs for people with NM diseases in 2007, so they're definitely doing something for our boys.
Personally, I'm thankful for the MDA and Jerry Lewis, and all they've done to advance this cause.