We currently see Dr. Mendell 2-3 times a year. In fact, we leave tomorrow for a visit Wednesday! We also see a local doctor once per year (at a MDA clinic) and Derek has a primary care doctor for his yearly physical, blood work and anything else that may come up. Both the doctor at the local MDA clinic as well as his primary doctor know that we make the trip to see Dr. Mendell and they don't seem to have a problem with it.
Veronica E. said:I'm in the same boat. We are going to see Dr. Wong's team at Cincinatti Children's this May, but we saw the team at Texas Children's initially. My thought at this time is that we'll go to Dr. Wong once a year and Texas Children's the other times, but Max is only two so I don't know if that will work out. I'm very interested to hear other parents' responses!