My oldest son,Jonah, has DMD. He is almost thirteen and still walks some and uses a scooter at school. We stared prednisone back in July '08 and we've seen the side effects as you all know. Now my youngest son, Carter, has been diagnosed with DMD and we're not sure if we should start him on steriods. Any opinions would help THIS SUCKS!!!
The choice to use steroids comes down to whether you think the side effects (and risks) outweigh the benefits. The benefits are well documented. The side effects vary from child to child. In some cases, they aren't worth the benefits. In some cases, they are. Only you can decide, there's no right or wrong answer.
Steroids are part of the care recommendations that came out of a global panel of 84 DMD experts, which is why you should consider it. Details at this webpage: http://www.parentprojectmd.org/site/PageServer?pagename=Care_elemen...
I NEED THE EXPERIENCE OF PEOPLE USE 10 DAYS ON/OFF STEROIDS,PLEASE.
I AM SWITCHING MY SON FROM DAILY TO 10 DAYS ON/OFF