medic alert bracelets

We have somehow lost my son's medic alert bracelet and need to get another. I want to make sure I have the correct information on it. Could any of you share what you have on your sons? Also, I'd love to hear any recommendations of good places to get the bracelets. Thanks so much!

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Permalink Reply by Joshua's mom on April 14, 2009 at 2:17pm
On Joshua's bracelet it says "Duchenne Muscular Dystrophy" and "on steroids". Medic Alert should have a record of his though. Many times they will replace them for free when it comes to children. Good luck!

Naomi
Permalink Reply by Julie Gilmore on April 14, 2009 at 7:42pm
If you are going to be speaking to medic alert, have a word about getting a bracelet for yourself. This may seem weird but we were advised to get a medic alert bracelet that reads: Carer of special needs child.

For the emergency contacts on the carers bracelet we have the school listed as one of the numbers. That way if anything ever happens during school hours, or on the way to do the pick-up, medicalert will contact the school and advise them of the situation so they can use their contact list to make alternative arrangements.

Outside of school hours it means that if you are ever ill or injured, the first responders know that contacting the people on your ICE list is a priority, as care arrangements for your child will have to be made.

We had never thought of this side of things - but when you actually think about it, it makes perfect sense.
Permalink Reply by J's mom on April 14, 2009 at 7:50pm
Thanks so much for your replies...very helpful! Could anyone tell me too what the specific wording should be regarding the anesthesia and malignant hyperthermia?
Permalink Reply by Kim Maddux on April 14, 2009 at 8:11pm
Hi -

We got ours from n-style.

http://www.n-styleid.com/.

They have cool "kid type" jelly bracelets. Alex wears his 24/7. I order 10 at a time and replace with a new one every 3 or 4 months. They are inexpensive. The important "medical information portion" has never been lost. I also have Alex registered with Medic Alert, with all information and all medication.

Alex's says: Alex Maddux, Duchenne MD, ANES Alert and our phone #.

I like the idea of a parent having a bracelet too. Never thought of that.

Thanks.
Permalink Reply by Joshua's mom on April 14, 2009 at 8:52pm
As soon as they see "on steroids", they don't use the anesthesia, they use alternate medicines that won't interact with them.

Naomi
Permalink Reply by Nicole Chiaramonte on April 15, 2009 at 9:15am
I went through Medic Alert for my son. The first year he was sponsor and yesterday we had to renew. On his it says Duchenne Muscular Dystrophy, steriod dependent and his ID #.
Permalink Reply by CVita on April 15, 2009 at 10:16am
We got ours from www.idtags.biz. For the anesthesia ours reads: NO succinylcholine or inhalational anesthetics. Susceptible to Malignant Hyperthermia.
Permalink Reply by Liisa Underwood on April 15, 2009 at 12:37pm
OMG, I never considered the need for a medic bracelet. Connor is not on any steroids yet, but should we still get one?
Permalink Reply by Joshua's mom on April 15, 2009 at 11:40pm
Yes, you should get one even if he's not on steroids yet. There are still precautions they have to take regarding him having DMD.

Naomi
Permalink Reply by Tamara "Michael's Mulisha" on April 16, 2009 at 12:28am
Michael's says...

DMD
NO HALOTHANE OR
SUCCINYLCHOLINE
EMERGENCIES
(555) 555-5555
Permalink Reply by J's mom on April 16, 2009 at 7:24am
Hi Lisa, I think simply having DMD makes him susceptible to malignant hyperthermia....even if he's not on steroids, so it might be a good idea to have one. Here's an article about it....http://www.parentprojectmd.org/site/DocServer/ANAETHESIAINdmd.pdf?d....

Thanks everyone for all the helpful info on this!

Liisa Underwood said:
OMG, I never considered the need for a medic bracelet. Connor is not on any steroids yet, but should we still get one?
Permalink Reply by Liisa Underwood on April 16, 2009 at 5:06pm
All, I don't mean to be so naive at times about this and I'm so happy to have these discussion boards to share information. FYI, there is an organization specifically dedicated to malignant hyperthermia: http://www.mhaus.org/ They have some great print outs to put in our children's records with their primary pediatrician, daycare providers and school nurses.

Thank you again for these recommendations!

Liisa

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