I just got a call today from Make a Wish foundation. Seems like a nurse we had seen made a refferal for Wyatt. He is only 3 1/2 right now. I guess my question is, How old were your children if they had their make a wish trip. I am thinking that he is probably too young right now to make his "wish" and have him actually remember it. What have ya'll done or think about a 3 year old already making his wish. Thanks for the thoughts.

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Jessica,
Riley was offered a trip (not through Make a Wish but a Baton Rouge foundation) at 5, right after his diagnosis. I asked them to please wait until he was old enough to make the decision himself about where he'd like to go and they were fine with it. I just recently contacted them and am filling out the paperwork now. I am hoping we'll go next year when he's 8. My reasons were 1. I wanted him to decide where he would like his trip, 2. I wanted him to be old enough to remember it, 3. I wanted it to happen when he was older, but still have mobility. I don't know how Make A Wish works but this organization was great about working with us. If Make a Wish does not let you wait, I can give you the info for this organization.
my son Ryan was in 3rd grade when he did his make a wish. We as well wanted him to be old enough to remember it and yet still be strong enough to be able to enjoy it. For him it was perfect timing. He knew exatly what he wanted to do , and with the help of a stroller was able to enjoy it. He had a little bit of a hard time getting on off the rides, my husband and I had to lift him on and off the rides, but other than that he was able to do everything he wanted too. If we would have waited another year i am not sure he would have been able to do as much. He would have been bigger, harder for us to lift him , and weaker. His wish was to stay at the Nickelodeon Hotel in Florida and be able to go to Swim with the dolpins. We were able to do that and in addition they gave us passes to Universay Studios, Sea World and Discovery cove. It was awesome! :)
I am a former Make A Wish volunteer/grantor - however, with my son's diagnosis almost 2 years ago, I am currently inactive - for obvious reasons. I'll tell you a couple of things about Make A Wish however. First of all, it is a wonderful organization. I have seen first hand what they do for kids. I never thought I would be on the other end - ie. having one of my children receive a wish. Our nurse inquired about Kyle's wish as well and we are putting it on hold as well because he is only 6. We want this to be HIS decision - not ours. However, we are also well aware that time is of the essence, but we are hopeful that we can wait a few years and his mobility won't be hindered too much. With Make A Wish, please note that it is not necessarily about receiving just a wish to Disney - although I will GUARANTEE your trip to Disney would be beyond unbelievable if that is what your child requests. The volunteer will work with your child to find out what he really wants. There are 4 categories that they will try to determine the best fit for your child: I wish to go....; I wish to be....; I wish to meet....: I wish to have... For example, I wish to go (to disney, or hawaii, etc); I wish to be (a police officer, model, etc); I wish to meet (Brett Farve,,, a famous person); I wish to have a playground set, a computer system, tree house, shopping spree, etc). Please remember, while we, as parents, may feel like we kind of sort of deserve this, really try to make it about your child - it will make it all that more memorable. I have asked our main nurse for Kyle to kind of give us a heads up when we might "really" want to consider this incase we haven't done so yet - ie. when mobility really starts becoming an issue (particular in the I want to go scenario). I asked my son once if he could have, do anything, or go anywhere he could pick in the world, what would it be - - - his response was ....... to run.... AND, he doesn't even know he has DMD... or does he? (running, by the way, IS his favorite thing to do - he runs like crazy). Best of luck!
That's exactly what Riley wants to do!!! I am so glad ya'll had a great time!

donna said:
my son Ryan was in 3rd grade when he did his make a wish. We as well wanted him to be old enough to remember it and yet still be strong enough to be able to enjoy it. For him it was perfect timing. He knew exatly what he wanted to do , and with the help of a stroller was able to enjoy it. He had a little bit of a hard time getting on off the rides, my husband and I had to lift him on and off the rides, but other than that he was able to do everything he wanted too. If we would have waited another year i am not sure he would have been able to do as much. He would have been bigger, harder for us to lift him , and weaker. His wish was to stay at the Nickelodeon Hotel in Florida and be able to go to Swim with the dolpins. We were able to do that and in addition they gave us passes to Universay Studios, Sea World and Discovery cove. It was awesome! :)
Give Kids the World Village in Orlando!!!!!!!!!!!!!!! The most amazing trip ever. I can't possibly imagine anything more. You get everything with it. I can tell you all about it, but it would take 20 pages. Age 4 or 5 or 6 would be fine for there. It is the best 7 days, we went everywhere, they give you tickets to all 4 Disney Parks, both Universal Studios parks, Sea World, Gatorland, and many, many more places. Give Kids the World is the most amazing place in this world, with every day bringing fantastic events and surprises. It is 100% all inclusive, stay, food, everything. For a young child, amazing and heart warming, and emotional. Imagine, free ice cream all day, from early in the morning, until late at night! Santa comes, there is a parade, games, dances, movies, pictures, visits with Disney characters, animals, a carosel. Just amazing. It is ran by 1,500 volunteers every week, from around the world. Amazing, did I say, amazing.
Michelle
Michelle,
We just got back from GKTW. Our trip sounded identical. The kids even went on a private plane tour over Orlando, and we went on a jetboat ride. Everything is covered, even things I would never even thought of. It was like they anticipated our needs. Kian is 9 y/o and I nominated him because he kept saying he wanted to see Disneyworld. I thought now would be best so he could really enjoy it. He made it through all the parks, but his legs were tired at the end of each day. We pushed him in carts some of the time. I highly recommend it to all the parents and kids. It was a great experience, emotional at times (for mom and dad) We went to all the Disney parks, and Seaworld. I posted Kians pics on my page.
Michelle & Christine,

Was the trip all enclusive because it was through Make a Wish? We are accepting a Wish through a non-profit here in Louisiana that does the same but of course on a smaller scale, so I was wondering if we would be able to get the same kind of trip...it sounds awesome!!!
if i could chime in..i suggest you wait, our oldest was 4 when he got his make a wish...a horse. it ended up a disaster, it was not a good riding horse, it was too young, and wild. austin was heartbroken when we had to give the horse away beacuse we couldnt control it. i just wish we had waited until he was older, he could make such a great wish now, at age 11 he knows who he is and what he wants. i dont think mobility has anything to do with a wish we enjoy disney now, even with austin in a chair,plus, i think he needs things to look forward to now more than ever. max is 8 and will be waiting a little longer for his wish. you will do what is right for you, but my advice is to wait a bit, he will have such fun with it as an older boy
I have 2 with DMD..I agree mobilitiy shouldn't be what motivates when you do the wish. My oldest did his when he was 12. He was using a scooter then but he knew who he was and what his passions were by then. He is now 15. His wish was to go to Normandy, France and see the beaches of D-Day and the American Cemetery. He wanted to honor those who fought in that battle and WW2.. He was diagnosed at 4. When he was little, he started a passion for all the planes of WW2 and we would go to the Air Museum here in Tucson quite a bit and he got to talk to the volunteers of which many were vets. Since he couldn't do sports he impressed his friends by all his war knowledge, airplanes etc. His wish was granted and we had a trip of a lifetime..A trip that was extremely meaningful to him and his interests.
We are now working on my 2nd son's wish. He is 11..He wants to meet the creator of Family Guy and be a character in an episode as he has decided he wants to create cartoons etc. We don't know yet if they will grant it but that follows his interests as well..just my thoughts and experience with it.
Hi Jessica,

My sons pediatrician referred him after he was diagnosed at four. I thought he was too young at the time, and to be honest so soon after his diagnosis I wanted nothing to do with it. I just couldn't stand to think that he was eligible for Make a Wish. They had no problem putting it on hold and would call occasionally to see where we were at. We decided last year to go ahead and we'll be taking our trip this summer when Cole will be 9. He was so excited when we explained it to him. He's been obsessed with trains forever, so he chose to go to Strasburg, PA. They have alot of railroad things to do and he'll get to do some really neat "behind the scenes" type things. He's so excited, I'm definitely glad we waited until he was old enough to really particpate in making the decision.
Riley would be eligible for a Make A Wish due to his DMD. However, you might want to check that if you accept the wish through this other non-profit that he may not longer be eligible through Make A Wish.

Rhiannon Traigle said:
Michelle & Christine,

Was the trip all enclusive because it was through Make a Wish? We are accepting a Wish through a non-profit here in Louisiana that does the same but of course on a smaller scale, so I was wondering if we would be able to get the same kind of trip...it sounds awesome!!!
Wow, what a great discussion. Hayden (4.5) and Cameron (1.5) are both eligible because of their DMD. We figured we'd wait until Cameron was around 5. We're kind of hoping at least one of them will want to do Disneyland. I've read about GKTWV, and it sounds just wondeful. We've considered saving up some money so that if Make-A-Wish can arrange it, we'll stay down a little longer on our own dime and do some other things that maybe aren't included in the wish.

My wife's sister and her family are going on their first trip next month I believe (they have two boys with DMD as well). They're going to Disneyland and I'm anxious to hear all about it when they get back.

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