Wow, how can those doses not be toxic? I've read that anything over 2500 a day can result in toxic build-up in an adult!
When we went from 1000 iu to 4000, we were told that the higher dose is becoming the standard in bone health when steroids are involved....
Jason Gautier said:Wow, how can those doses not be toxic? I've read that anything over 2500 a day can result in toxic build-up in an adult!
I asked Dr. Leshner if he is seeing a pattern of boys with DMD on or off steroids having low vitamin D issues. He said it's across the board.
I think since Duchenne boys are living longer lives and because more of them are taking steroids, clinicians and specialist are starting to take Bone Health more seriously. We have to find a therapeutic range for our son. 2,200 iu's a day is not a therapeutic dose for him. That's why we do vitamin D blood draws. So, we have to find what dose does work for him, all the while, keeping an eye on side effects such as kidney stones. My son may need more vitamin D than other Duchenne boys. As usual with this disease, you play pick your poison. Kidney stones or a fracture femur?
Christine- that's 70,000 iu's a week. Are his levels therapeutic now? Curious to know also how his energy level is, too. Same question posed to you Lori as well. Does Seph have more energy?