Looking for best neuro muscular Dz {dmd} in MONTREAL PROVINCES.

Hello,I'm reaching our fellow Canadian who lives in Montreal.What is the best clinic who does have good reputation to manage kids w/DMD?Please reply,b/c I'm thinking to moove to one of Montreal provinces,in the near future.

Thank you,

 

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I meant QUEBEC HOSPITALS FOR DMD PATIENTS.

Hi Djamel,

I can only speak for the Montreal area of Quebec: there are 2 pediatric hospitals in the city with neuromuscular clinics; The Montreal Children's Hospital is where we go see Dr. Chantal Poulin and her team. There is also Hopital Ste. Justine, where the DMD clinic is headed by Dr. Guy D'Anjou. Both extremely competent, compassionate, bilingual and busy doctors!

You have more chance of getting services in English at the MCH, but Ste.Justine is bigger and has better funding (Celine Dion is their spokesperson!) (you also always have the right to request an interpreter). The Children's goes to the trouble of special access for Deflazacort, while I believe that Ste. Justine deals strictly with Prednisone (not sure, something to ask). The MCH is building on a new site and will be joining adult hospitals in a new building within a couple of years. We began dealing with Ste. Justine last year as they were chosen as a site for the Prosensa/GSK exon 51 skipping trial that my son is in.

I worked at the Children's for 14 years as a lab tech, so I am just more familiar with it. I am not working now due to my destroyed knee.

Andrea

Thank you for your reply,then I'll choose to establish at Montreal,where I have few friends & family,also I speak fluidly french.Thank you,again



Andrea Cleary said:

Hi Djamel,

I can only speak for the Montreal area of Quebec: there are 2 pediatric hospitals in the city with neuromuscular clinics; The Montreal Children's Hospital is where we go see Dr. Chantal Poulin and her team. There is also Hopital Ste. Justine, where the DMD clinic is headed by Dr. Guy D'Anjou. Both extremely competent, compassionate, bilingual and busy doctors!

You have more chance of getting services in English at the MCH, but Ste.Justine is bigger and has better funding (Celine Dion is their spokesperson!) (you also always have the right to request an interpreter). The Children's goes to the trouble of special access for Deflazacort, while I believe that Ste. Justine deals strictly with Prednisone (not sure, something to ask). The MCH is building on a new site and will be joining adult hospitals in a new building within a couple of years. We began dealing with Ste. Justine last year as they were chosen as a site for the Prosensa/GSK exon 51 skipping trial that my son is in.

I worked at the Children's for 14 years as a lab tech, so I am just more familiar with it. I am not working now due to my destroyed knee.

Andrea

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