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Permalink Reply by Kim Innabi on December 5, 2009 at 11:08pm

Adele, this is very sad. I have seen him at the last few conferences, and he was a wonderful, inspirational man and it was always uplifting to hear him speak on the panel of young men living with Duchenne. He will be missed.

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Permalink Reply by carrie on December 7, 2009 at 6:32pm

I too was saddened by the news. I enjoyed meeting him and reading his book, which brought me new perspective. I certainly valued his contribution as a role model for our boys, and will certainly speak of him fondly in future years. My heart goes out to his family.
Best,

Carrie

Kim Innabi said:

Adele, this is very sad. I have seen him at the last few conferences, and he was a wonderful, inspirational man and it was always uplifting to hear him speak on the panel of young men living with Duchenne. He will be missed.

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Permalink Reply by kathy mcdonald on December 14, 2009 at 4:00pm

I remember talking with Dee on the MD loop. Haven't heard from her in awhile. Our son Alex passed on nov.29, 2009. We live in FL about 2 hours south of gainesville where she lives. So sorry for her loss as well.

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