I have two sons with DMD , but my oldest passed away this morning about 8:00. He was a fantastic kid. I loved him so much and will miss him with all of my heart . Not even sure how I'm going do this but here we go. He was only 13 years old with DMD. My other son with DMD is 9 and is also a great kid. At least he's not asking too many questions ------Hug your kid today and tell them you love them. You don't know how long you have!!! I thought we'd have at least another 10 years but I was wrong big time. I miss him so much.