Jonah died today

              I have two sons with DMD , but my oldest passed away this morning about 8:00.  He was a fantastic kid. I loved him so much and will miss him with all of my heart . Not even sure how I'm going do this but here we go.  He was only 13 years old with DMD. My other son with DMD is 9 and is also a great kid. At least he's not asking too many questions ------Hug your kid today and tell them you love them. You don't know how long you have!!!  I thought we'd have at least another 10 years but I was wrong big time. I miss him so much.

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Permalink Reply by danielle on March 23, 2015 at 7:28pm

i am so sorry to hear this it breaks my heart every time i read that a child passes way to early no parent should have to bury there child. 

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