PPMD Community

Has anyone gotten IV port in the chest for Exondys 51 weekly infusion? how was the procedure? were there any issues after the surgery?

Views: 110

Reply to This

Replies to This Discussion

My son has had his port for a little over a year (he was in the trial).  It's been relatively smooth.  It freaked him out at first (he'd just gotten used to arm pokes) but infusions are no big deal now.  He does have discomfort from it sometimes, particularly if he gets a bit dehydrated - so another reason to keep fluids up.  If you have specific questions, feel free to contact me directly (catherine.lake@stoel.com).    

Reply to Discussion

RSS

© 2017   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service