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Permalink Reply by Lori Ware on June 6, 2012 at 10:26am

I can't tell you if it is too early or not, however, my son was not diagnosed at that age, but was in PT b/c he didn't walk until he was 17mths old.  We put him in PT for that at 15 mths.  He has been in ever since.  It is just what he knows. I think there is benefit in getting him used to stretching, that that is just a part of his life.  We have found a wonderful FUN therapist who listens to the DMD guidelines about what to do/not to do and my son has NEVER minded going (he is 10 now).  If I knew now what I knew then, I would probably only have taken him 1-2/mth instead of weekly, but still, I think for us, being in PT has served us well.  If not for the stretching aspect (we did strength stuff with him pre-diagnosis until he was 3.5!!!) for the aspect of this is just something that he does weekly and it is and always has been his normal.

Don't know if this helps you or not, but I hope so!

If you are asking is it necessary?  I would ask do you know what stretches to do and are you doing them.  Even at 18 mths, I would be doing stretches.....

If you aren't doing them, then yes, some PT would be beneficial.

Good Luck!

Lori

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Permalink Reply by Keith Van Houten on June 6, 2012 at 11:16am

Try asking PT Jennifer Hernandez for her opinion....

www.duchennetherapynetwork.com

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Permalink Reply by Peter on July 3, 2012 at 2:00pm

My boy is attending a physiotherapy once a week. But it is rather a play then real physiotherapy. He is teaching to stay balanced on narrow objects, having fun going down a chute, playing in a pool with balls. For the time being, according to docs, he doesn't need any stretching but I suppose it's worth it.

Thanks Keith, I made a request for suggestions on www.duchennetherapynetwork.com,  now waiting for reply.

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Permalink Reply by Sif Hauksdóttir on August 27, 2012 at 5:38am

Our son started PT at 18 months but we didnt know the diagnoses then, our younger son will start at 23 months, not because he needs it but because we want him to get used to going there :)

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Permalink Reply by Dalibor Randjelovic on August 28, 2012 at 7:10am

Thanks for sharing, I would like to ask you are you giving them some supplements ( Q10, Idebenone,....)

Sif Hauksdóttir said:

Our son started PT at 18 months but we didnt know the diagnoses then, our younger son will start at 23 months, not because he needs it but because we want him to get used to going there :)

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Permalink Reply by Sif Hauksdóttir on August 28, 2012 at 7:14am

No the older one has just started steroids, i am so new to all of this what are the benifits of these supplements? :)



Dalibor Randjelovic said:

Thanks for sharing, I would like to ask you are you giving them some supplements ( Q10, Idebenone,....)

Sif Hauksdóttir said:

Our son started PT at 18 months but we didnt know the diagnoses then, our younger son will start at 23 months, not because he needs it but because we want him to get used to going there :)

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