Does anybody have (or know of) an information sheet I can give to my son's nursery school about the possible side-effects of steroids (behaviours etc)? He's due to start in March and I would like them to have a reference for any potential issues.
Action Duchenne also has a leaflet on bone protection - email firstname.lastname@example.org for more details
There's more details in the Standards of Care family guide as well but this may be too detailed.
We sent a copy of Education Matters to Joshua's school, which answered a lot of questions they would have called to ask if they didn't have it. They don't have any paper copies available but you can download and e-mail it to the nursery school. Hope this helps!