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Does anybody have (or know of) an information sheet I can give to my son's nursery school about the possible side-effects of steroids (behaviours etc)? He's due to start in March and I would like them to have a reference for any potential issues.

Thanks.

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Lisa

Try this...

http://www.muscular-dystrophy.org/how_we_help_you/publications/1939...

Action Duchenne also has a leaflet on bone protection - email kate@actionduchenne.org for more details

 

There's more details in the Standards of Care family guide as well but this may be too detailed.

regards

Mark

Thanks Mark, that's really handy.

We sent a copy of Education Matters to Joshua's school, which answered a lot of questions they would have called to ask if they didn't have it.  They don't have any paper copies available but you can download and e-mail it to the nursery school.  Hope this helps!

PPMD Support Material

Thanks Joshua's Mom.

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