When your child is becoming non ambulatory and in the process of getting a power chair. What types of things should I be looking to buy or change to my home that are the most important. Do I have to get funding now? I wish there was a guide for parents to follow when this all happens. I feel overwhelmed. Any help would be great!
The first bit of information is to get a vendor that knows about the chair. We have had tremendous nightmares dealing with our vendor. We have had our chair for two years and are still waiting for the repairs needed. Most insurances will pay for at least half and you may want to start fundraising if you live in a state that does not offer any financial help. I live in NY, need I say more. We got a permobil stander because it came highly recommended for our son who is now 15. PPMD is who recommeded the chair. The problem is there is not enogh trunk support to hold the child up. My son was resting all of his weight on his knees that were resting on the pads that were attached to the chair. I have been dealiong with permobil reps, but to no avail. As far as your home goes the bathroom and emergency exits are the most important. Get ramps installed at as many doors as possible. We are still waiting for a bathroom to be built, right now we still lift him and he is 118 lbs. We have tried to make all of the accomodations to our home because I wanted all parts of the home to be accessible to him except the basement. Wide doorways are a must, but you would be amazed how small a doorway will fit through. The power chairs tend to be wider and higher than the manual ones, so kitchen table may need to be raised. They should sit as straight backed as possible. We had to custom biuld my son's desk so he could do his homework. If you have any more qurstions you can email me at email@example.com. My name is Lisa Vainosky.