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Are You giving idebenone to your kids?does it really help?does anyone uses it instead of steroids?

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Michele, have a look at this post for info on COQ10 which is similar http://community.parentprojectmd.org/m/discussion?id=1187424%3ATopi...

COQ10 is not the same as Idebenone but they are believed to have similar action. My reading is that no clinical study has found Idebenone or COQ10 to be effective as a replacement for steroids however muscle strength increase on top of that provided by prednisone was seen with COQ10. Unfortunately that muscle strength increase did not cause improvement in timed tests.

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