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Permalink Reply by Dalibor Randjelovic on February 28, 2015 at 2:28pm

Hi Nadja, I read this post, we are thinking to order from this supplier but I wanted to hear your expirience or anyone else whose child using idebenone of hbc product.

Thanks in advance.

Randjelovic

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Permalink Reply by Nadja on February 28, 2015 at 3:15pm

Hi dalibor,i give my son idebenone from kirkmann i think since may 2014.in the First time i thought it was working really good but i can not really say that it is so....he is doing very well but i dont know is it because idebenone or the other things he get....perhaps it is the Same when he doesnt get anything....i Hope you understand what i mean
I Hope your son is Doing fine!
Best wishes

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Permalink Reply by Rahul Deshpande on March 2, 2015 at 12:01pm

Hi Nadja, In the clinical trial of Idebenone done by Catena they gave up to 1000mg to children of 10 years and more. Higher dose was tolerated well by the children. I give my 9 year son 600mg. Can't say if any improvement is seen, but Idebenone remains the only supplement that is close to getting approved.

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Permalink Reply by Kathleen on February 1, 2016 at 12:52pm

Dear Nadja,

I would like to give my 4 yr old Idebenone ( Raxona/Catena)

But doctors in Holland are not familiar with Idebenone yet.

Could u tell me about your results, the doses that has been sucsribed and if u do not mind I would also love to know a name of a docter that subscribes Idebenone to such a young child. 

Thank u so much and whiting you all the luck in the world with your boy.

Warm Regards,

Kathleen.

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