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Catena je Idebenon. Jedná se o doplněk - obrátil léky - značkou. Idebenon se prodává on-line. Tam jsou jiná místa na objednávku z Kirkman, ale je levnější než Smart výživu . Objednali jsme od Smart Výživa pak šel do Kirkman a tam byl žádný rozdíl. Joshua začala brát 150mg v dopoledních hodinách po dobu 6 měsíců, pak šel do 150 mg ráno a večer po dobu 6 měsíců. On váží 57 liber. Byli jsme poslali dopis z každého jeho specialisty volat jej "normální". To je velká v našem světě! Jeho dopisy byly zaslány také Cochrane recenze jako mimo výzkum.
Catena vychází ze Švýcarska, Santhera Pharmaceuticals . Existuje mnoho dceřiných společností ačkoli. Jeden z Montrealu, Quebec nás volá každých 6 měsíců se dostat nejnovější informace o Joshua a dává aktuální informace o procesu přehled. Jediný problém s ní stává lék je cena. Právě teď jsme ho objednat a zaplatit cca. 450,00 dolarů za roky stojí za to. Co se stane léky, pokud je cena zůstává stejná, to bude stát nás, pokud si dobře pamatuji, blíže k $ 40,000.00 ročně, a to se vztahuje pouze 2 pojišťovny.
Naomi
Thank you very much for being informative,Joshua's mom.That is great.Actually,I live in Canada,but dr didn't mention anything about Catena.One more thing,is catena the same as Idebenone which is sold online?
Here are the recently published results from the 12 -month trial with Santhera's idebenone:
http://www.parentprojectmd.org/site/DocServer/Delphi_NMD_2011.pdf?d...
These results show some improvement in the respiratory function but not much else.
Catena and Idebenone may not have the same chemistry, but neither might Advil and Ibuprofen. All medications start from some natural source. We have seen a huge difference since starting Idebenone. In his doctor's letters which we received after, they called him "normal". Much like medication of any kind, not everyone gets the same effect. Joshua also takes 10 supplements & deflazacort daily as well.
Blazena - Joshua is 8 and weighs 57lbs. He started with 1 then went to 2. In my personal opinion, supplements can have as much of an effect as medications so I'd start with 1 to get the body used to it, then work your way up slowly. I do know of a girl with DMD who is 12 and weighs approx. 100lbs. She takes 3 per day.
Naomi
Catena and Idebenone may not have the same chemistry, but neither might Advil and Ibuprofen. All medications start from some natural source. We have seen a huge difference since starting Idebenone. In his doctor's letters which we received after, they called him "normal". Much like medication of any kind, not everyone gets the same effect. Joshua also takes 10 supplements & deflazacort daily as well.
Blazena - Joshua is 8 and weighs 57lbs. He started with 1 then went to 2. In my personal opinion, supplements can have as much of an effect as medications so I'd start with 1 to get the body used to it, then work your way up slowly. I do know of a girl with DMD who is 12 and weighs approx. 100lbs. She takes 3 per day.
Naomi
Happy to hear that you noticed benefit. My hope is that Santhera's idebenone proves effective in the phase 3 clinical trial and is approved for DMD. So far the results are promising in terms of respiratory function. I definitely hope that the 12 month trial confirms these results and hopefully shows some skeletal muscle benefit.
Joshua's mom said:Catena and Idebenone may not have the same chemistry, but neither might Advil and Ibuprofen. All medications start from some natural source. We have seen a huge difference since starting Idebenone. In his doctor's letters which we received after, they called him "normal". Much like medication of any kind, not everyone gets the same effect. Joshua also takes 10 supplements & deflazacort daily as well.
Blazena - Joshua is 8 and weighs 57lbs. He started with 1 then went to 2. In my personal opinion, supplements can have as much of an effect as medications so I'd start with 1 to get the body used to it, then work your way up slowly. I do know of a girl with DMD who is 12 and weighs approx. 100lbs. She takes 3 per day.
Naomi
As I mentioned above, the results show that Santhera's idebenone helps respiratory function.
http://www.reuters.com/article/2011/05/09/idUS36152+09-May-2011+HUG...
Liestal, Switzerland, May 9, 2011 - Santhera Pharmaceuticals (SIX: SANN) announced today that it will present first analyses of the 2-year open-label study (DELPHI-E) evaluating Catena® for the treatment of Duchenne Muscular Dystrophy. The findings indicate that Catena® can slow the decline in respiratory function associated with patients as they age. Data will be presented on May 9, 2011 in Lille, France at the 4th International Congress of Myology
Did you noticed, Santhera removed the estimated date of end study from December 2012 to 2013.
Ofelia Marin said:Happy to hear that you noticed benefit. My hope is that Santhera's idebenone proves effective in the phase 3 clinical trial and is approved for DMD. So far the results are promising in terms of respiratory function. I definitely hope that the 12 month trial confirms these results and hopefully shows some skeletal muscle benefit.
Joshua's mom said:Catena and Idebenone may not have the same chemistry, but neither might Advil and Ibuprofen. All medications start from some natural source. We have seen a huge difference since starting Idebenone. In his doctor's letters which we received after, they called him "normal". Much like medication of any kind, not everyone gets the same effect. Joshua also takes 10 supplements & deflazacort daily as well.
Blazena - Joshua is 8 and weighs 57lbs. He started with 1 then went to 2. In my personal opinion, supplements can have as much of an effect as medications so I'd start with 1 to get the body used to it, then work your way up slowly. I do know of a girl with DMD who is 12 and weighs approx. 100lbs. She takes 3 per day.
Naomi
Catena and Idebenone may not have the same chemistry, but neither might Advil and Ibuprofen. All medications start from some natural source. We have seen a huge difference since starting Idebenone. In his doctor's letters which we received after, they called him "normal". Much like medication of any kind, not everyone gets the same effect. Joshua also takes 10 supplements & deflazacort daily as well.
Blazena - Joshua is 8 and weighs 57lbs. He started with 1 then went to 2. In my personal opinion, supplements can have as much of an effect as medications so I'd start with 1 to get the body used to it, then work your way up slowly. I do know of a girl with DMD who is 12 and weighs approx. 100lbs. She takes 3 per day.
Naomi
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