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Great, that will be 300mg, please let me know the brand and mg per tablet, please let me know the size too comparing it to maybe protandim.
Thank you.
Hi Juan,
I'll do better than that! Here is the link for Idebenone. It is a long covered capsule. Smaller and easier to swallow than the Protandim size.
Joshua has been using Idebenone for 2 years now. He is 8 years old and just graduated to a bigger bike. We did the 6 minute walk tests before he started, 222, after 6 months of a single dose, 397, and after 1 year of a double dose, 577. He hasn't used the Gower's in more than a year. His respiratory is normal and his school academics are now normal. Physiotherapy became easier for the physiotherapist, and we almost lost our school bus because Joshua doesn't need to use the lift at all anymore. We still have it only because of the extra entrance steps.
Naomi
Hi Terry,
No, Joshua doesn't see Dr. Wong. We live in Canada.
I advise every family to start Idebenone.It must be compared to Steroids since it is really helping.
I ask families not to underestimate the effect of Idebenone
hi all ,my son also has been on idebenone ,150 mg twice a day,prior to starting steroids and it is great for his speech and over all energy. He has now been on steroids 18 mg deflazacourt for 3 weeks.He is having really bad tantrums and very emotional ,my heart tells me to cut him back to 12mg,anyone done this balancing before?Joshuas mum can you tell me your sons weight?
hi all ,my son also has been on idebenone ,150 mg twice a day,prior to starting steroids and it is great for his speech and over all energy. He has now been on steroids 18 mg deflazacourt for 3 weeks.He is having really bad tantrums and very emotional ,my heart tells me to cut him back to 12mg,anyone done this balancing before?Joshuas mum can you tell me your sons weight?
Hi,Naomi
I hope your day is well.I am Wainaina from Nairobi,Kenya.I would be really grateful if you could enlighten me abit on Idebenone.Is it the same as COQ10?How does it help the DMD boys?Thanks and bless.
Wainaina.
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