I looked at those, the only thing is they are 50 mg capsules, that means according to our neurologist who said to take 900 mg daily, Alex would have to take 18 capsules. he takes so much vitamins and medicines, this is too many to take. I was looking for either a 100 mg cap or 180 mg cap. Kirkman is so expensive. any other suggestions? thanks so much
Hi Donna ,
We buy 150mg capsules from kirkman.
You can buy empty big capsules and you can fill it with of couple of 50 mg capsules, if you like.
How old is you son?
He is almost 11. He has duplication of exon 2 BMD. His doctor when i asked him about idebenone, said to put him on 900 mg of idebenone or 900 mg coQ10. this doc usually does not recomend vitamins but this time he said they are recommending it now for all with DMD/BMD. so for me this sounds promising. we are going to do the 3 min walk before starting to see where he starts out and then measure him every three months. Primaforce has a 180 mg capsule which averages out to be .49 cents and kirkmans has the capsule at 150 mg at .57 cents. I think I am going to get the Primaforce. I have checked everywhere. I may call primacare and see if you buy in bulk, the come down in price. how old is your son. hope he is doing well.
My son is 7.5 and we give him 300mg. we are planning to move up to 450mg. We see dr wong. We started him on it seeing other parents. My son is doing fine. Thanks
We started Chase (7) on idebenone from Kirkman two weeks ago, ramping up from 150mg to 600mg. He's done great with swallowing the pills (150mg ea or 4 pills/day), but we haven't seen any effects, good or bad. Hoping to see some difference in the next month or so.
We may also increase to 900mg, since that's the level his neurologist suggested.