I have not been on this website for awhile know, My son Hunter who has Duchenne fell last week and broke his femur. Its sad one second he is walking and enjoying life the next he is bed ridden for months. All he was trying to do was get up in midle the night and go pee. My wife and I blame ourselves for this because we make him wear his leg braces 24 hours a day. We had that none slip rubber stuff on his braces for the longet time until it started to peel off we also have hardwood floors. Hunter normaly slips his shoes on to go to the bathroom but this time he decided not two and then bam he slips and falls and shaters his femur. I and my wife feel horible and blame ourselves for this. Does anybody else have this sort of thing happen and if so what are Hunter chances of being able to walk again he still one good leg and the other will heal they ended up putting pins in it.
Any advice would be Appreciated
keep him active. This whole thing is completely exhausting ,but, make a conserted effort to do more than before.
go on walks (pushing him).. go to the park.. go to see a show...get out of the house...have movie night. Make this leg thing an opportunity for the whole family. No excuses! Then maybe he won't fall subject to weight gain and the rest of the crap that comes with this disease and depression.
My son Jonah broke his leg last July and we lost him from a blood clot. I have another son with DMD also and now try to make every day special. Because in the end all anybody has (DMD or not) is today.
Good Luck....Bob (Jonah and Carter's Dad Forever)