I dropped Seph off at school this morning and the Principal came out to the car. He told me that he was reviewing words with his class (Kindergarten) and Seph is having trouble with his words. "his recall is not where it should be". I told him that yes, I was aware of that, that it is a typical Duchenne trait (as he was handing me flash cards with the words on it). He LAUGHED.
Now this man has done nothing to educate himself on DMD, he did not sit in on the IEP except to come in for a brief moment, made a stupid comment to which I corrected him and left it at that.
I KNOW that Seph's reading is not where I would like it to be...part of this is DMD, part of it is that his sisters were not good readers in Kindergarten (the oldest has been reading on college level since she was 11...now 14!). My kids catch up and we know that DMD boys without cognitive issues catch up.
So, what would you do? Would you talk to the principal? send an email thanking him for his concern and try to educate him some? Not worry about it???????
I am pretty frustrated with him, but am not really at the school as a whole...just him and his interaction with Seph is limited.
I would love to hear your thoughts!