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Hi everyone,

 

Since Wyatt started steroids in January he has been extremely active. Obviously doing more than he was doing pre-steroids. Lately while stretching him I have noticed that his muscles are extremely hard. I can still stretch him like normal but they feel like rocks. His calves and his thighs. Is there something I can do for him? He has also been waking up at night, saying "it hurts, it hurts" I am assuming he means his legs. I have been giving his motrin prior to bed trying to alleviate some pain he has. I just wish there was something else I could do. Any ideas are appreciated.

 

Jess 

Tags: muscles, pain, tightness

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Our son had a big increase in activity since starting steroids, too (just over a year ago, now). Since that time, his muscles have definitely bulked up, it seems, and sometimes they are hard as rocks like you said. Especially after he's been really active. No complaints of muscle or leg pain though ... But w/ regard to the hard muscles, we will do extended soaks in a nice hot tub, and extended stretching. It seems to really help, and the next day he is back to his normal self. We had a very active Memorial Day (for us!), at the end of which he said his legs "kind of hurt" ... a nice long soak in a very warm tub, followed by a longer-than-usual stretching session, and yesterday he was a-ok. Starting the steroids is a blessing, getting our kids closer to "normal" little-guy activities, and at the same time sometimes I feel like it is a curse and you can't stop them from being so active!!! Ah, the trials ... Good luck.
We too have noticed a huge jump in activity over the past year. We don't get the "it hurts" as much as "I'm tired" or "I want daddy to carry me", which we will do. Longer easy stretches seem to make it better. A good hot soak is a good idea. Sometimes I think rest is key as well. I've never had to give him motrin or Tylenol. I look at the steriods as a true blessing, as we have a happy little boy whose childhood has been restored. I do, however, worry sometimes that he's doing too much but have come to the conclusion (with doctors' cousel) that he will know when to stop. I'm relying on that.

Allyson said:
Our son had a big increase in activity since starting steroids, too (just over a year ago, now). Since that time, his muscles have definitely bulked up, it seems, and sometimes they are hard as rocks like you said. Especially after he's been really active. No complaints of muscle or leg pain though ... But w/ regard to the hard muscles, we will do extended soaks in a nice hot tub, and extended stretching. It seems to really help, and the next day he is back to his normal self. We had a very active Memorial Day (for us!), at the end of which he said his legs "kind of hurt" ... a nice long soak in a very warm tub, followed by a longer-than-usual stretching session, and yesterday he was a-ok. Starting the steroids is a blessing, getting our kids closer to "normal" little-guy activities, and at the same time sometimes I feel like it is a curse and you can't stop them from being so active!!! Ah, the trials ... Good luck.
When Joshua gets to this state he too sits in a hot tub for a while but we have him lay on a spa mat. He lays down on it and afterward his legs are gel soft. It works really well. He'll stay on it for approx. 1/2 - 3/4 of an hour. He comes out really relaxed!!!
What is a spa mat? Seph does not normally had this and I attribute that to Protandium. After a VERY active day, his muscles look very bulked up and are hard, but normally they are pretty soft.

Joshua's mom said:
When Joshua gets to this state he too sits in a hot tub for a while but we have him lay on a spa mat. He lays down on it and afterward his legs are gel soft. It works really well. He'll stay on it for approx. 1/2 - 3/4 of an hour. He comes out really relaxed!!!
The spa mat we have is also called a hydromassager. It's made by Conair. It has suctions on the bottom and a hose that goes into the mat and blows the air into the mat and acts like hot tub pressure does. It comes with a blow-up pillow as well. It is an inexpensive hot tub!!! Joshua sometimes falls asleep... so it's a good idea not to leave them alone when they first start. :)
cool, I will look into that!

Joshua's mom said:
The spa mat we have is also called a hydromassager. It's made by Conair. It has suctions on the bottom and a hose that goes into the mat and blows the air into the mat and acts like hot tub pressure does. It comes with a blow-up pillow as well. It is an inexpensive hot tub!!! Joshua sometimes falls asleep... so it's a good idea not to leave them alone when they first start. :)
Kyle has always been very muscular (hindsight, huh?). He is very active and does occassionally complain that his legs hurt; typically after an even more active day. The thing that he loves best is very gentle massage. It melts him like butter and he really relaxes. The warm tubs I think help also to loosen things up as well and he will spend at least a half hour in the tub "swimming". Might be something to mention to his doctor and/or PT as well.

Donna
Hello,
We had the same problem after starting steroids. We started taking Lucas to a registered massage therapist once a week for massage. The first few weeks he would massage Lucas--while giving us instructions on how we could do it ourselves. Every night for the last year and a half we have massaged him after the stretches. He went from walking on his toes a lot the time, to walking on flat feet again within a few months. Lucas still goes for in for massage once a week. He does still have bad days from time to time when his legs are really sore though.
We massage prior to stretching to loosen up the muscles and it certainly works. That way they are warm and the blood is flowing, prior to stretching to protect the muscle. We use an oil and work it in well. We do all of it while Kelvin is sleeping. It works best for us. Immediately after stretching, the braces go on to hold the stretch we just did. Kelvin has never had trouble with hardness or pain, but, I too think the Protandim is helping. Reports have shown what Protandim can do. I give Kelvin 1 entire pill per day.

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