I am curious if DMD boys on steroids have a higher IGF-1 results.  I believe normal range is between 62 to 337.  We were on GH therapy for 1 year and then went off of it.  It took many months to get off of it.  Now it is once again higher at 500.  I am wondering if anyone knows if there is one of those labs that is variable....like the CPK.  I am also wondering if the steroids cause the IGF-1 to be higher. 

Thanks.

Char Burke

 

 

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I am starting my kid on IGF, can you tell me the dose you are using, weight and age of your kids?

JP.

Juan,

I do think that the dose would depend on the test results (IGF-1 level in the blood) for each child. When you say you are starting your son on IGF do you mean growth hormones? So he has been to an endocrinologist? 
 
JUAN PEDRO ARBULU said:

I am starting my kid on IGF, can you tell me the dose you are using, weight and age of your kids?

JP.

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