Our son has had severe SID (or SPD now) since birth, and it has posed so many challenges. Not only has he lived forever in sweat pants and cotton shorts made from t-shirt material, but he used to scream like you were skinning him if you brushed his teeth, or cut his hair or toenails.
The other thing Mitch has is an extreme sense of smell...... he can come home after school and know if his grandma has been over as he can "smell" her. For some of our friends this wouldn't be a challenge as some of them to like to marinade in perfume, however all of our family keep perfume and after shaves to a minimum as we know it sets Mitch off.
He also used to like banging his head (although he still does it if he gets upset) and when he was a baby he would stare at light bulbs (which really freaked me out, as it really made my eyes hurt to try and do it)
He is a typical Princess and the Pea, and whilst most days its bearable, sometimes I get so frustrated when it takes 10 minutes to get a pair of socks on, because the "crimples" don't feel right. We now use the diabetic loose top socks, which is helping, and as Mitch is nonambulant we just don't put shoes on (he also has pes cavus which doesn't help the shoe situation at all)
He has an incredible long term memory, but very restricted short term memory, but a perfectly normal IQ. He is OCD about a lot of things, including reminding you how to do things or when things need to be done (which drives me insane some days).
The weird thing is, the smells, textures and diet "anomalies" (he can pick "his brand" of juice by smell and refuses to drink any others) have become so much a part of our life that I couldn't imagine going to the supermarket and having a choice of what flavour (or brand) of juice to buy..... I can almost pick suitable clothes by just looking down an aisle of clothing, and whilst it is frustrating, I understand that clothing will always need to be adjusted, and since the VPap became part of the night-time routine I now just "budget" the 15 minutes it takes to get Mitch in bed and comfortable....
I have started a new group called tactile sensitivity, partly because I think it would be great for us to have an area where we can share issues unique to our boys and give each other tips and strategies, and also because I really would love to see how many families are dealing with this, as our physio seems convinced our son is the exception not the rule.......
Hope you all join as I'm sure there will be some wonderful advice on offer for our boys
I can't believe how many others have the sensory problem. My son Tyler not only has to have his shirts with no tags and his socks and underware just the way he likes, he also has a sensory problems with his pillow and blankets. If his pillow is turned the wrong way, or his blanket isn't laying on him just right when he's getting ready to go to bed it's a big battle every night. I adjust the blanket at least 3 or 4 times until it's just perfect for him, then he'll go right to sleep. Seams his blanket has to lay on him just right, and can have no bunches in it at all, just like the "socks" before he will go to sleep. I do pretty good with adjusting his blanket for him each night so he can get a good nights sleep, but it really drives me crazy when I have two other children to tuck in and get ready for bed too. Does any one else go through this same thing?