My son Jaylen was 3.5 years old in August 2015 when he was diagnosed. Its tough getting the diagnosis, but we are trying to learn as much as possible about it. I am also not a carrier of the disease and no one in our family has ever had this. Will you be coming to the PPMD conference in June. We are planning on going and would love to meet you. Reach out if you need to talk. I am also trying to think of ideas of how to raise awareness of DMD similar to the ice bucket challenge for ALS.