Luc saw the cardiologist last week and they said his heart is only working at 60%.
I am concerned because he is so young. Is anyone else in the same situation ? Is this usual for an early diagnosis Duchenne ?
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Angelique - this is Kathi from PPMD. Can you give some more information as to how Luc's heart function was measured and a little about Luc (how old is he?)? I can maybe help address your questions and concerns.
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