Heart Failure Drugs Preserve Muscle in Muscular Dystrophy

What about this, any comments?

Both of them are apporoved drugs, farmacological approach and near treatment?

Am I missing something or this could be very promissing ...at least?

 

http://medicalcenter.osu.edu/mediaroom/releases/Pages/Heart-Failure-Drugs-for-MD.aspx

Views: 3265

Reply to This

Replies to This Discussion

Hi Juan

Hope u doing well.Pls have a look at the link below also on decorin and fibrosis

http://sci.rutgers.edu/forum/showthread.php?t=104555

Regards

Wainaina

Hi all, here is an article + interview of Dr. Rafael-Fortney (dated Dec 2011) who conducts the study:

http://www.newschannel5.com/story/16209169/the-fight-against-duchen...?

Really interesting.

thank you Galia!!

Galia Ben Ishay said:

Hi all, here is an article + interview of Dr. Rafael-Fortney (dated Dec 2011) who conducts the study:

http://www.newschannel5.com/story/16209169/the-fight-against-duchen...?

Really interesting.

Juan:  I am very interested to know how your boy is doing on this combination.  Can you please share any information that you have.  Thank you, Terry


 
JUAN PEDRO ARBULU said:

He started with this combo, all together.

 

JPA

wainaina muiruri said:

Hi,juan

 

How is the going,Juan.Will get you my boys weight over the weekend.It is Friday here now,so tomorrow or day after i will do that.You mentioned that your boy is starting on Deflazacort too,or he has done them for some time now?

Hi Terry,

Juan is doing good, what  I see is that he is stable, he is on Deflazacort,Idebenone,Protandim, Vitamin D, lisinopril and we took away Spironolactone one month ago just to see if he is ok only with Lisinopril...no changes.

No big changes when he started on Lisinopril and Spirolactone...just stable and HAPPY!!!



Terry Porcaro said:

Juan:  I am very interested to know how your boy is doing on this combination.  Can you please share any information that you have.  Thank you, Terry


 
JUAN PEDRO ARBULU said:

He started with this combo, all together.

 

JPA

wainaina muiruri said:

Hi,juan

 

How is the going,Juan.Will get you my boys weight over the weekend.It is Friday here now,so tomorrow or day after i will do that.You mentioned that your boy is starting on Deflazacort too,or he has done them for some time now?

I agree this is very exciting.  Our son with who is 20 is actually on both of these drugs.  One thing to keep in mind is I am sure the boys in this study are monitored closely for example spironolactone can affect potassium levels, K+ and if these levels are not in the correct range can cause cardiac arrhythmia's of which many DMD guys have problems with even when not on these drugs.

Anybody else whose child takes these drugs or only lisinopril. Please share your observations.

Reply to Discussion

RSS

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2019   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service