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Permalink Reply by Polly Sundeen on December 11, 2008 at 3:22pm

Cole is 9 and during our recent visit to see Dr. Wong it was noted that Cole is literally "full of poop"! It was clearly noticeable on his spine xrays in November. I had a feeling that he was having a problem - and had just started to give him a childs dose of miralax. We've continued to give it to him since his visit a month ago and seems to be having less problems. Poor guy would be appalled at me sharing this information!

I haven't noticed the other problem you mention with swelling or changes to his skin color.

Since he is having a problem again with this I should mention that he does have frequent ingrown toenails. Anyone else have this problem?

Polly

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Permalink Reply by carrie on December 12, 2008 at 12:33am

Our son takes benfiber every day and it helps significantly with the occasional constipation he otherwise has

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Permalink Reply by Liisa Underwood on December 17, 2008 at 9:55pm

Back in late August, I sent out a note on these discussion boards about constipation that is titled "DMD and Constipation." A good source.

My 3 year old has been on Miralax 1 tablespoon daily since August. He's had magnesium citrate (colon cleaner that tends to prep people for colonoscopies) 5 times since then and I have to do another one this weekend. I put in a call to his MDA physician to see how common this "clean out" frequency could be or if this is unusual.

I have not seen the other symptoms, but it sounds like worth investigating further.

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Permalink Reply by Laurie Paschal on December 17, 2008 at 10:57pm

My DMD son does not have this issue, but his unaffected twin does. He's on 4 tsp Miralax daily, plus we had to do a "clean out" one weekend. His urologist (he wets b/c of the back up) had us give him a 32 oz bottle of gatorade with 16 tsp of Miralax one Saturday. He had to drink it all within 8 hours, but not less than 3. Not sure how well it worked as he's still having issues, but we're currently waiting on his ultrasound appointment to rule out any further problems causing his wetting.

Liisa Underwood said:

Back in late August, I sent out a note on these discussion boards about constipation that is titled "DMD and Constipation." A good source.

My 3 year old has been on Miralax 1 tablespoon daily since August. He's had magnesium citrate (colon cleaner that tends to prep people for colonoscopies) 5 times since then and I have to do another one this weekend. I put in a call to his MDA physician to see how common this "clean out" frequency could be or if this is unusual.

I have not seen the other symptoms, but it sounds like worth investigating further.

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Permalink Reply by Karen on December 19, 2008 at 12:57pm

Hi Polly

Erik had had consistent issues with ingrown toe nails. After about 4 years of footcare we finally had the nail beds of 4 toes (both big toes and 2 smaller toes) removed surgically. He now has funny looking toes, but no more ingrown toe nails. He even had a finger nail that had the problem for 3 years same finger. The bed was removed, nail grew back but hasn't been a problem. I always wondered if it was due to the steroids, puffy extremities.

Karen

Polly Sundeen said:

Cole is 9 and during our recent visit to see Dr. Wong it was noted that Cole is literally "full of poop"! It was clearly noticeable on his spine xrays in November. I had a feeling that he was having a problem - and had just started to give him a childs dose of miralax. We've continued to give it to him since his visit a month ago and seems to be having less problems. Poor guy would be appalled at me sharing this information!

I haven't noticed the other problem you mention with swelling or changes to his skin color.

Since he is having a problem again with this I should mention that he does have frequent ingrown toenails. Anyone else have this problem?

Polly

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