Hello everyone. My son is 17 1/2 years old with DMD. Like many boys with DMD, his appetite and weight have decreased to now weighing only 85 pounds. I think its a combination of problems... he is off steroids for 2 years now and he is having diffuculty swallowing. We started Carnation Instant Breakfast powders since January at the suggestion of our feeding specialist. He hated the boost, ensure supplements because he found them chalky tasting. So... now as things have progressed they have planned to insert a Gastrostomy tube into his stomach for feeding. Just wondering if anyone has experienced this and what was it like? Thank you