As Keith stated, the type of health insurance plan covering your family/son will be the factor whether you need a referral or not. Even if you do not need a referral, speak with a plan administrator or case manager about such things as 'out of state service' and to learn if the doctors are 'in network'. Many children are covered by state health insurance programs which do not cover services out of state except for emergencies or in situations where a form of treatment is unavailable locally. Sometimes physicians are not in your plans 'network' and you will either be responsible for a higher portion of the bill and in some cases not covered. Your insurance card should have a contact number on the back for you to call to speak with someone who can answer these questions.
Best to you and your family.
Hi Tracey - I'm very sorry about your son.
Duke is a trial site for the GSK study on exon skipping. If you don't want to travel as far, I'm guessing that any neurologist who is experienced enough with Duchenne to run a clinical trial would be better than who you're currently seeing...