I filled it out, though I guess ours was sort of a unique situation. Hayden (our oldest) was diagnosed a few months after his third birthday. He was showing some signs, but not many. Previous to being diagnosed, he had seen a physical therapist because he was very late walking (about 26 months), but they thought he was hyperflexible and suggested that was the problem.
It was after his cousin was diagnosed, and I read up on DMD that I realized if his cousin had DMD, and his mother was a carrier, than Mandy (my wife) could also be a carrier. That's when we asked our family doctor to do a CK test on Mandy, and when it was inconclusive, we had one done on our sons. It would have been done eventually as the geneticist is still tracing it through the family, and we would have been near the top of that list.
The survey didn't account too much for a situation like that, but I tried to answer it as accurately as I could.
I did take the survey but didn't think it really gave you an opportunity to talk about "specific elements" that you say the task force is looking for. I felt it was too generic.