"Extraordinary Measures" contest - $10,000 to a non-profit - please vote online!

There's a sweepstakes for a $10,000 donation to a non-profit of the winner's choice being offered as a promotion for the upcoming movie "Extraordinary Measures", which stars Harrison Ford and is inspired by the true story of a father that's struggling to find a cure for his child with a life threatening disease.

I've posted a simple video on Duchenne muscular dystrophy. Each vote the video receives gets me an additional entry in the sweepstakes for the $10,000.

To vote, just go to this website link http://extraordinarymeasuresthemovie.com/#/quilt Then in the search bar, enter the word DMD.

My video is titled Duchenne Muscular Dystrophy.

You can vote for a video once per day from now until January 29, 2010.

Thanks ! Please take a few seconds to vote as often as you can this month. With the success our community has had with these online contests lately - and the relatively few number of contestants so far - we have a good shot at winning this one too!

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I voted...be back to do it again tomorrow.
I did.
Done and put in my calander for daily reminder.
done and will put on FB for my friends to vote
Thanks.
Just voted and will continue to vote daily until the 29th. Will also spread the word to family and friends. Terry Porcaro
Great Opportunity! I voted
I have been voting everyday, but have a comment for keith. Your video says children survive to 20s and 30s. I am wondering how many really survive till 30? What is the average age of survival. Is it really 20s and 30s?
I also posted to Facebook. Just think, if everyone posted and voted.
Thanks for voting, Bains.

I took most of the text directly from the PPMD website, including the part you're asking about. I think most of the numbers you see on this are probably outdated, and it's probably difficult to determine with any certainty - just like the 1 in 3500 number we discussed recently in another thread...

http://www.parentprojectmd.org/site/PageServer?pagename=understandi...

Bains said:
I have been voting everyday, but have a comment for keith. Your video says children survive to 20s and 30s. I am wondering how many really survive till 30? What is the average age of survival. Is it really 20s and 30s?
Bains,

I googled "average age of death for boys with dmd" and many sites came up. I went to several and it varied slightly but the average seemed to be about 20years old plus or minus five years. Being that that is a 10 year window I guess the average is hard to pinpoint. It does seem though that survival beyond 30 is not common. Boy, that was depressing to write out.

Bains said:
I have been voting everyday, but have a comment for keith. Your video says children survive to 20s and 30s. I am wondering how many really survive till 30? What is the average age of survival. Is it really 20s and 30s?
There's a second DMD video up on the site now as well - you might want to check out and vote for that one as well.

I think a lot of the videos that have been posted are going to be removed or disqualified, because they violate the rules of the contest. Most include copyrighted music.

Thanks, Keith

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