Like many parents in our community, I am frustrated by the number of people who have never heard of Duchenne or what it means to our sons. I have created an opportunity for our community to help change that simply by wearing the word DUCHENNE---to the gym, shopping, parks, trains, planes, automobiles and even on snail mail via postage stamps!

Please visit http://www.zazzle.com/galsforcal*
(Be sure to unclude the * at the end)

While the motivation for this site is specifically about creating awareness, it has been set up so the proceeds from all sales go directly to help fund the Mass General Hospital Pediatric Neuromuscular Clinic. A coordinated care clinic that is involved in research and providing quality care for our sons.

Cindy

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Cindy,

What a great way to spread awareness about this disorder! I am so tired of DMD being referred to as "MS or something", even by the most well intentioned friends/family.

Duchenne affects so many of us, so much of our families - it is a disorder of the whole family...and so much of our children's bodies - there is so much to do - there is room in this disease for all of us to do a part, nothing to big or small - it all helps!

Thank you for taking this piece of it and wearing it - literally!

I am ordering mine today!

Christine McSherry

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