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Permalink Reply by JUAN PEDRO ARBULU on April 3, 2013 at 5:38pm

I am waiting too.

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Permalink Reply by Phil on April 4, 2013 at 5:44am

I am also waiting. My son has exon 43 deletion. 

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Permalink Reply by Andrew Kerr on April 4, 2013 at 10:02am

I'm also anxious to hear results.  2 sons and 2 nephews with a deletion of 45.

Really hoping they'll consider running a Phase III near us.

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Permalink Reply by Jacobs Mommom on April 4, 2013 at 11:17am

We were told by Cinn. Children's that the trial for GSK exon 44 is supposed to be here by the end of the summer.

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