What was the result according to this father?I also heared positive results from this trial
David, I am very happy to hear about your son's results and wish him and everyone in your family the very best..
My son had more lung function tests last week. The trend towards improved lung function did not continue on the path we had hoped for, but it still remains essentially unchanged from January 2013. I'll take that!
Please note that the trial doesn't include lung function as primary outcome at all. This is just me looking for clues wherever I can find them.
He is returning for cardiac MRI in September, which is the primary outcome measure of the trial.
best wishes david for your family...you had mentioned cardiac mri as the primary outcome of the trial right?