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Permalink Reply by Karen on February 25, 2010 at 7:08pm

Hi

Our son (17 years old) saw Dr. Christian Roth at Children's for the first time 2 months ago. He asked good questions. He is looking at the areas I think are important (bone density, growth hormone, long term steroid use etc). We will meet him again after March. So far, so good. Dr. Apkon (director of Muscle clinic) has connected with a different endocrinologist at Children's who is interested in working with kids with dmd. I would contact Kiko Van Zandt to get that name. Good luck. Not every endocrinologiest knows dmd, so it's good to ask around.

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Permalink Reply by Jim on April 18, 2010 at 11:34am

Our son is also seen by Dr. Roth. He is one of the best doctors I have ever observed. He is extermely thorough and very good with our son. It is easy to communicate with him. Our son has started Utropin AQ for 3 months now and so far so good.

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