PPMD Community

Just curious - has anyone in the PPMD community received insurance approval for Emflaza (deflazacort) in the US?  We're currently working through the process, but no surprise, the insurance company has already announced a blanket rejection of the drug, given the insane pricing.

I hope that PPMD is speaking directly with the executives at PTC to stop this unethical price gouging.

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United Healthcare has been reviewing my sons app for a month, no response. Ive little hope they will approve.

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