Hi Greg, My friend and I also inquired about Medra they call you right back and he is a Dr in California that does this in the Dominican. I asked for names and his experience with Duchenne kids. I wouldn't trust anything that sounds to good to be true with a tag of $30,000. I do want to see proof. Show me the proof not just a needle in a leg and hope for the best and my son will not be a guinee pig. I pray it is true and we have an option but I think this would be well known if it were. I think our doctors are close to having something to help our boys. I know every moment counts and its so hard to wait but i can't afford to lose my home and my son for a scam. Lets PRAY our doctors start moving their butts and start with the utrophin.
After reading your post Greg my husband (an attorney in California) and I looked online further into this Medra, Inc. Dr Rader is listed as living in Malibu, California, and there are no disciplinary problems listed. However, this Medra, Inc. thing looks really suspicious. Our best guess is there is an extremely large potential of fraud. My husband said what they are claiming on their website would be illegal in the state of California, Dr Rader's license would be pulled. I suspect that is why the website doesn't have a mailing address or show a business office location. If you read his resume it doesn't really say anything conclusive nor does it look anything like an official resume for a doctor who functions legitimately.
His resume states he is a psychiatrist, a shrink...which has nothing to do with practicing medicine and using stem cells. Betty Ford Center would be shocked to know he is using them in an unethical way. Psychiatrists in the US do not venture into other medical specialties without being punished because they lack proper training to switch between fields.
My son is also 11 (as of next month) and I am with you...desparate for something to come along before it is too late. Stem cells might make it someday but I wouldn't put too much into the Medra thing. Essentially they claim to have treated 1500 kids - this translates to meaning they have defrauded 1500 families.
Keep your eyes out there tho, something may come up soon.