PPMD Community

Duchenne Updates on Twitter

Are any of you guys on Twitter? I've found that following @Duchenne_Tweats, @MDAnews and, of course, both @CureDuchenne and @ParentProjectMD are great for keeping up-to-date on research news and activities benefiting kids with DMD. I've set one up, too, which I keep updating with news and information: @LiamsFund.

If anyone knows of any other good Duchenne or general MD/genetic disease research Twitter accounts, please post them here.

Thanks,
kopper

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Permalink Reply by Sam Anderegg on November 20, 2009 at 10:39am

Hi, I also launched a Swiss DMD Twitter: @MyDuCHenne

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Permalink Reply by Christina on December 3, 2009 at 9:12pm

Thanks for the info...I'm trying to figure the whole Twitter thing out, so this is helpful since it's info I need to keep on top of.

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Permalink Reply by Misty VanderWeele on December 27, 2009 at 3:35pm

@duchennemom

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Permalink Reply by Jeffrey Kopp on December 28, 2009 at 3:29pm

What I really found that helped was to use their "Find People" function:

http://twitter.com/invitations/find_on_twitter

Click on the "Find on Other Networks" tab and then enter your email address and password and it will search all of your email contacts to see if anyone you know is signed up. Then follow those people. Following people you know and can interact with is a lot better than following a bunch of celebrities, politicians, etc. who you don't know. Makes it a lot more fun to use, too.

Happy tweeting,
kopper

Christina said:

Thanks for the info...I'm trying to figure the whole Twitter thing out, so this is helpful since it's info I need to keep on top of.

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Permalink Reply by Jeffrey Kopp on April 15, 2011 at 2:53pm

I just thought I would bump this topic up again to see if anyone else is using Twitter. If so, please post your links, especially if they are DMD-related.

Here are a few more:

http://twitter.com/runforoursons

http://twitter.com/MuscularDys_Bio

http://twitter.com/CampaignsMD

http://twitter.com/EventsMD

Thanks!

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Permalink Reply by Jon Moulton on May 24, 2011 at 10:44am

For tweets citing new Morpholino antisense literature, you can follow me @jonmoulton. Most tweets are not directly DMD related, though many discuss using Morpholinos to modify splicing and many address models of human genetic diseases.