My Son is 3.5 years old. He has a DMD, with Exon 44 deletion. I want to meet with parents and family with whose exon 44 deletion. We can discuss about this conditition.
My son is 8 years old and he has also got exon 44 deletion. I read that Prosena is starting trials of skipping exon 45 this year. Also Sarepta is going to start trial for 44 deletion by end of the year. It seems there may be some medicine available by 2016. Let us hope for the best. What treatment you are giving to your son now.
Now we are going on with homeophaty remedies, green tea extract and fish oil. We couldn't experience idebenone now because he reject the tablet that include idebenone.