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Actually, I goofed up. Cigna denied us. We have BCBS starting in January. Cigna told us on the phone it was covered, but after they drew the blood, the lab called and said it wasn't covered and would be $5000.
Hi Julie
Best of luck with your situation...the onyl thing i can offer you is my son was diagnosed last year at the age of 7. I saw a genetics specialist at USF(university of south florida) He is the youngest of 3 boys and my two other boys are doing fine. No one in our family has had MD. I did get the genetic blood test thru Athena that confirmed it for Kyle. At the time our ins. was Aetna who paid zero towards the testing. Yes it is 5000 dollars...I pay as I can and that is it. It is suggested to get me, my two sons and daughter tested however if i do the math that would be 25 thousand dollARS. So unless something happens in favor of financial help we are not set to get tested..i have to hope that this is a genetic mutation gone wrong with kyle because i would rather spend 25 grand on helping my debilated child than to pay a lab to tell us yes or no..the only time i would do it is really when they are like you and rady to start a family...right now in these times its not even an option...good luck and please if you find out anything different please share it with us...i do feel guilty that the kids arent being tested at this time but i can grow a money tree either...good luck
I ended up switching Insurance (BCBS to Independent Health) to get the DMD carrier test from Athena Diagnostics. I don't know if my new Insurance has covered the test in full or not but I only had to pay $1200 to enroll in the Patient Protection Plan...so that is the most i will pay for the test.
I recieved the results back last week and I am happy to say that I am not a carrier of DMD.
thanks
Julie
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