i dont even know whitch category to put this discussion in...
my son was diagnosed with duchenne in march. we had been seeing a neurologist because he also had microcephaly. we were sent to genetics to see if we could find the problem with his head size and thats how we got our dmd diagnosis.
i kinda put the microcephaly on the back burner until yesterday at his 2 year well check, we learned that his already small head hasnt grown at all in 6 months.
my question is, does anyone else have the diagnosis of muscular dystrophy and something like microcephaly? i feel like they have to be related, i just dont know how... and im just wondering if were the only ones, or if anyone else is going through anything similar.
thanks for reading my rambles.