Our son is five, he's been on Deflazacort for a few months and we've noticed two things: First, he sleeps much less than his brother (who does not have DMD) - sometimes an hour or more per night less - he's always up by 5:30...ouch. Second, he wakes up 2-3 times each night, and when he does he is says he's thirsty.
Gus is also on Enalapril for his heart and a varitety of supplements, but we're thinking Deflazacort is the main suspect. Has anyone else had similar experiences?
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