My son diagnosed at age 9 has deletion 46-47.I am in Dallas.He is done with all of his tests .Nowthe question is Should we go with Prednisone that his Neurologist said she is gonna prescribe OR go to Cincinnati hospital to have prescription for Deflazacort OR not go with any steroids as it as severe side effects and is not producing dystrophin anyways.Can we please discuss here to make me decide.

1-Is you son on Deflazacort or Prednisone or no steroids?

2-How long they have been using it ,what are the side effects so far?

3-Are they still walking?

Thanks

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