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Deflazacort

My 11 year old son with DMD has been taking prednisone for 6 years now. We want to switch to Deflazacort. Xavier usually takes 5mg/2xday, on Saturday's and Sunday's only. Does anyone have any dosing advice?

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Permalink Reply by Andrew Kerr on August 18, 2016 at 12:53pm

Depends on what you're looking for.

The equivalent amount would probably be about 6mg taken on the same schedule.

The standards of care says that they should be on .9mg/kg/day of Deflazacort, which is roughly what our kids are on.

http://www.parentprojectmd.org/site/DocServer/TREAT-NMD_DMD_interim...

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Permalink Reply by anitha on August 19, 2016 at 1:21am

My son is 7 yrs ild.Dr suggested to start steriod. Can anyone suggest which steriod is best. Deflazacort or Prednisolone? And the correct dose. His wt is 24.7 kg.

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Permalink Reply by Jay Griffin on August 22, 2016 at 9:53pm

Try VBP-15 clinical trial

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Permalink Reply by jiasusa5 on September 13, 2016 at 11:54pm

Deflazacort ..less weight gain
anitha said:

My son is 7 yrs ild.Dr suggested to start steriod. Can anyone suggest which steriod is best. Deflazacort or Prednisolone? And the correct dose. His wt is 24.7 kg.