I am very happy to hear you and your son will be a part of this research! I can email you the 'mother' questions but would have to meet in person with your son. I can send you the consent form; it has information that could help. I am asking boys (DMD) to draw 1 or 2 pictures. Then I will ask him to tell me a story about his pictures and his feelings surrounding being a boy with DMD.
Thank you! I will click pictures from now on! I may just need to take the time to navigate the site.
And, I will come to you. Meaning to your home. A local meeting place. My office (in Downers Grove). Where ever your son and I can sit and he can have privacy to draw and tell me his story. What email address may I use to send you the description and consent forms? Not sure if I can do it through this site. But, I can try............